Since I last wrote, there have been many many phone calls by me to Biogen, Curascript (a specialty pharmacy for chronic illnesses) and MS ActiveSource for financial aid for drugs. I was at first told it would cost me $16,000 a month. Then 2 weeks ago I was told by Curascript that I qualified for only $958 a month co-pay (ONLY?). MS ActiveSource had told me in April that I did not qualify for assistance because I was enrolled in Medicare. Then in May my Medicare pharmacy approved the drug, but when I called MS ActiveSource on Monday to see what was happening, I was told I still wouldn't qualify unless: 1) I was in the donut hole, or 2) I was in the catastrophic category and/or had met my deductible. I had no idea about this because I get the 2 drugs I currently take for free. The woman I spoke to said she would check with my drug plan and call me back on Tuesday, which she did not do.
Just now I received a call from Curascript. First they gave me the $958/month figure again. I AGAIN told them I couldn't afford that. She said let me check the other case file we have for you. Two minutes later she said your insurance covers 25% of the monthly co-pay and MS ActiveSource covers the rest, leaving you with just a $10 co-pay.
Hooray!!!!!!
I receive my first month supply this Friday. I won't be starting on it until I return from my trip back East for my 50th high school reunion.
Hooray!!!
This is not a cure nor will it necessarily help with my symptoms (although it might), but it is supposed to help slow down the progression. And, as an added bonus, help with the psoriasis, which is what the drug has been used for the last 10 years in Germany.
Hooray!!!!!
There is no other news to report. I have been working hard in preparation for our reunion, which takes place in 10 days - yikes. We've been working on this for 2 years so it's hard to believe it is finally here. I will have lots to report after I return. In the meantime, I'm going to go do a little jig in celebration of the good news.
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